This week we’re interviewing Kim Wilson, who writes the blog Celebrating Inchstones. Kim has four kids, the youngest of whom has mitochondrial myopathy. This is a disease caused by a genetic mutation that affects the mitochondria in the body’s cells. As a result, Asa has trouble producing the sounds needed to make words. However, Asa is able to understand much of what is said to him, and he can make his wishes known in other ways. In our interview, Kim discusses her son’s speech therapy techniques and shares her experience navigating the special education process.
This week we’re featuring Tori S. of Jake’s Journey to Be a Little Man, a blog that chronicles the life of Tori’s son, Jake. Jake has apraxia, which is a motor speech disorder that interferes with his ability to form individual sounds and words. Apraxia is not caused by poor oral muscle development, but rather by a miscommunication between the brain and the muscles. So while Jake understands what he wants to say, his brain has trouble signaling his muscles to make those sounds. In our interview, Tori discusses the home-based speech therapy techniques that she uses to help Jake become more verbal.