This week we’re interviewing Kim Wilson, who writes the blog Celebrating Inchstones. Kim has four kids, the youngest of whom has mitochondrial myopathy. This is a disease caused by a genetic mutation that affects the mitochondria in the body’s cells. As a result, Asa has trouble producing the sounds needed to make words. However, Asa is able to understand much of what is said to him, and he can make his wishes known in other ways. In our interview, Kim discusses her son’s speech therapy techniques and shares her experience navigating the special education process.
This week, we’re featuring Gina Badalaty of Mom-Blog. Gina has been blogging about special needs since 2002. Her focus is on raising awareness and helping other parents of special needs kids. Gina herself has two special needs children: Amelia has a rare form of Down syndrome and Zoe has autism spectrum disorder (ASD). In our interview, Gina discusses the many speech therapy techniques she has used with both of her daughters – the ones that worked and the ones that didn’t. While not all speech therapy treatments helped Zoe and Amelia, it’s important to remember that every child is unique. Gina also pointed out that treatment techniques are always evolving. The number one lesson from Gina’s story is to keep trying until you find something that helps, and to never let your child’s disability get in the way of her happiness.